Most of the raw data for the MADIVA Research Hub was collected by MADIVA’s principal collaborators in rural Agincourt, South Africa, and in urban informal settlements in Nairobi, Kenya. These collaborators have rich datasets from longitudinal population studies collected by the health and demographic surveillance systems based in the two locations, together with a nascent set of clinical health records and genomic data. Given the sensitive nature of this data, up-to-date policies must govern access to and sharing of it. We are also sensitive to the fact that the data is given to MADIVA by the original data providers for MADIVA purposes only.
